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Comment on ‘I’m in pain 24/7, it never goes away’ – Newry mum of two Ellis Oliver shines a light on invisible disability Ehlers-Danlos Syndrome by Nikki Casey
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Newry woman Ellis Oliver has spoken about her family’s experience with invisible disability, Ehlers-Danlos Syndrome, to coincide with Ehlers-Danlos Syndrome (EDS) and Hypermobility Spectrum Disorder Awareness Month. Explaining how EDS has affected her life – and her two children – Ellis continues, “EDS impacts most of our daily life, from struggling to get dressed for school, not being able to do contact sports or sometimes no PE at all due to the risk of injury. Ehlers-Danlos Syndrome isn’t well-recognised by GPs or medical professionals in Northern Ireland, which often means people with EDS face years of pain and seemingly unconnected issues before they finally get diagnosed.