So… update…. Jake and Tom are now 16. I’d love to say they’re doing really well but they’ve both got a neuroimmune condition called PANS (a dysregulated immune system causes horrific neuropsychiatric symptoms) so the last few years have been very difficult. PANS/PANDAS is rarely diagnosed and treated properly in the UK so the boys have suffered terribly. Now under a wonderful private immunologist, but as they remained untreated for so many years, it’s going to take a long time to get them close to ‘baseline’.