Advertisement Hide AdAdvertisement Hide AdMum Emma said: “Freddie was six months old when he was diagnosed with Alagilles. Advertisement Hide AdAdvertisement Hide Ad“It was an amazing thing to do. Advertisement Hide AdAdvertisement Hide AdSix months later, he underwent open heart surgery, and three months after that, he became seriously ill with sepsis and pneumonia. “Although Freddie’s condition has led to multiple surgeries and hospital procedures, without his liver transplant, he simply wouldn’t be here,” Emma said. "We would urge everybody, if you do one thing this Organ Donation Week, just share your wishes about organ donation with your family.