Michiel Vandeweert, who lived with the rare genetic disorder progeria and shared his journey online, has died at 28. Vandeweert, a Flemish content creator who openly shared his experiences of living with the rare genetic disorder, has died at the age of 28. Despite the prognosis he received as a child, Vandeweert lived far beyond the expectations doctors had once given him. When you look at how Michiel lived his life, you can only admire that,' he said, according to VRT NWS. 'It is with deep sadness that KRC Genk bids farewell to Michiel Vandeweert,' the club said.