And despite getting her diagnosis in April 2017, Tilly now requires 15 screws drilled into her head to pinpoint the part of her brain that is malfunctioning, before a second brain surgery will remove it. View 6 Images Tilly struggles to remember things she has done with loved ones (Image: Tilly Jones)“What if I don’t wake up? View 6 Images Tilly and her boyfriend Tom (Image: Tilly Jones)‌In recent days, Tilly has been given a nice boost, after her friend Sophie, set up a GoFundMe for her. ‌It will be years before she can try to conceive after her brain surgery and by then she will be in her late 30s. View 6 Images She hopes brain surgery will finally stop the seizures (Image: Tilly Jones)‌Writing on the GoFundMe, Sophie said: Tilly is incredible.