Parents of children with a rare genetic condition say they fear Wales is being left behind as other parts of the UK introduce routine screening for newborns. After widespread campaigning, including by former Little Mix star Jesy Nelson, testing for spinal muscular atrophy (SMA) will happen in England and be trialled in Scotland but not in Wales. Warren Davies, whose three-year-old daughter Ophelia-May has SMA type 2, external, said it felt like the Welsh government was "playing God because they have the opportunity to effect change and are choosing not to". The Welsh government said it had followed UK National Screening Committee (NSC) guidance that had not recommended routine newborn screening for SMA. Newborn screening for SMA is also not in place in Northern Ireland, external.