None
EN
Re: Autism and ADHD de-diagnosing services could be rolled out in Sweden—should the US and UK follow suit?
['Paul M Davis']
The BMJ
Agreement: I AgreeBody: Dear Editor,
This is an interesting area and I thank the author for stimulating this debate. I have had several patients in the past who have wanted their diagnosis removed. I have usually said to them that it is their diagnosis, to use as they wish, and if they don't choose to use it that is their prerogative. In the UK we do not have registers of people with ASD/ADHD and they are not officially discriminated against by the state. That may not be the case in other countries. In the UK it is a matter for the individual to disclose if they feel it is relevant or if they are required to do so in order to be truthful, e.g. in a job application in specific circumstances. This could be an issue for people applying for a pilot's or heavy goods vehicle or passenger services vehicle license or those who want to join the armed forces, for example. For some of these there may be a requirement for an additional medical assessment to ensure that they are fit for the role. The UK armed forces traditionally have not wanted medicated ADHD patients to engage in front line fighting but they can have other roles in the amed forces.
I can't see that a de-diagnosis service would be useful or necessary in the UK. There may be various reasons why people would want this re-identification and in some people I have seen they were very clearly neurodiverse but simply did not want to identify in that way. My opinion would be that people can identify as ASD/ADHD if they want to and do not need to if they do not accept that description. There is equally no reason in the UK why individuals cannot identify as ASD/ADHD even if they have not been diagnosed. There is no automatic benefit or competitive advantage in using that label and it would not (in my opinion) be considered fraudulent simply to self-identify as neurodiverse.
There are also practical implications in how the reassessment would take place. Current diagnosis relies heavily on reports from the individual, parents, teachers etc.. If it is known that the patient is seeking rediagnosis these sources are likely to be unreliable. There would need to be more reliance on objective assessments which could be time consuming and requires different skills and resources. If the reassessment depended heavily on the self-report of the patient or their close family and friends, we may as well allow the patient to re-identify on demand without requiring a professional reassessment. Given the general drift toward populism and consumerism in this area it would be very difficult for professionals to impose a diagnosis on a patient who did not want it.
There is also the obvious dilemma that the NHS is woefully under-resourced for Neurodevelopmental assessments generally and the NHS resources are really needed for the patients who can benefit most from them, i.e. younger and more severely affected individuals. Patients seeking re-diagnosis are likely to be relatively more able, older and possibly more affluent. Inevitable patients following this path would be driven towards expensive private services when there is really no need.
It may be reassuring for individuals with a neurodiverse diagnosis to know that they are in control of their diagnosis and that, in the UK at least, they have the freedom to identify in the way that they see fit without needing state, or intrusive professional, intervention.
No competing Interests: YesThe following competing Interests: Electronic Publication Date: Friday, October 3, 2025 - 18:35AI use: No, I have not used AIHighwire Comment Subject: Autism and ADHD de-diagnosing services could be rolled out in Sweden—should the US and UK follow suit?Workflow State: ReleasedFull Title: Re: Autism and ADHD de-diagnosing services could be rolled out in Sweden—should the US and UK follow suit?
Highwire Comment Response to: Autism and ADHD de-diagnosing services could be rolled out in Sweden—should the US and UK follow suit?Check this box if you would like your letter to appear anonymously:: Last Name: DavisFirst name and middle initial: Paul MEmail: paulmdavis493@gmail.comAddress: CardiffOccupation: Consultant Community PaediatricianAffiliation: IndependentBMJ: Additional Article Info: Rapid response