READ NEXT: Couple call for screening to be introduced for rare condition as daughter diagnosedHe told the Glasgow Times: “After the amount of campaigning we had to do it's just amazing. Since Grayce was diagnosed, Tony has raised almost £10,000 for SMA UK through fundraising efforts including two Kiltwalks, a raffle and walking from Edinburgh to Glasgow. Now, all parents will be offered SMA screening for their new born babies through the existing blood spot test at five days old. He said: “I am proud Scotland’s NHS will be the first part of the UK to screen newborn babies for SMA. "By detecting SMA before symptoms develop, screening could allow earlier treatment which could lead to much better life outcomes.