None
EN
How the neurodiversity movement has left some autism families behind
['Jess Craig', 'Jess Craig Is A Health Reporter For Straight Arrow. She Worked As An Infectious Disease Epidemiologist', 'Health Security Technical Advisor For International Research Institutes', 'U.S. Government Agencies.', '.Wp-Block-San-Story-Byline Data-Display Bio', 'Container-Name Story-Byline Container-Type Inline-Size Display Flex Flex-Direction Column Gap Var --Wp--Preset--Spacing--Lg', '.Wp-Block-San-Story-Byline__Author Display Grid Grid-Gap Var --Wp--Preset--Spacing--Sm', 'Var --Wp--Preset--Spacing--Md', 'Gap Var --Wp--Preset--Spacing--Sm', 'Grid-Template-Areas']
Straight Arrow News
“It’s become something that’s self-diagnosed, that people celebrate as an identity, and that’s really had a deleterious effect on discourse around profound autism.”
The movement has also changed autism research itself.
But most autism research focuses on trying to find out what causes autism, in order to prevent or ‘cure’ it.
The backlash partly explains why researchers increasingly distinguish people with “profound autism” from the broader autism spectrum.
Guardianship and residential facilitiesThe tensions between the neurodiversity movement and some parents, particularly those raising children with profound autism, extend beyond research and therapy.