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Opinion: Ten years after WHO recognition, mycetoma remains one of the world’s most neglected diseases
['Borna Nyaoke-Anoke', 'Jennifer Karlin', 'Jeffrey Millstein', 'Rebecca Myerson', 'Allison Espeseth', 'Laura Dague', 'Krutika Kuppalli', 'Placide Mbala', 'David J. Hunter', 'Jason Mast']
STAT
My organization, Drugs for Neglected Diseases initiative (DNDi), first got involved with mycetoma after our team saw the way it impacts communities.
First, the good news: In 2017, DNDi, working with the Mycetoma Research Center and Japanese pharmaceutical company Eisai, launched the world’s first randomized, double-blind clinical trial for mycetoma in Sudan.
Finally, the disease’s inclusion on the WHO list of neglected diseases acted as a catalyst for global collaboration.
The next 10 years of mycetoma care will determine whether it remains a story of neglect or becomes one of collective action.
Borna Nyaoke-Anoke is a physician and the head of mycetoma disease at Drugs for Neglected Diseases initiative.