"They're like we need to discuss something about private duty nursing and so we're like okay this must be something serious," Morgan said. The call delivered difficult news: the private duty nursing program that staffs a nurse to help Levi when his own nurse cannot be there is discontinuing on Oct. 1. Nurses come to the Thoene home overnight so the family can sleep, and during the day, nurses accompany Levi to school. "It doesn't really allow us enough time to like adjust and really wholly make a good decision," Morgan said. "Children’s Nebraska has made the very difficult decision to discontinue our Private Duty Nursing program, effective Oct. 1.