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A Day in the Life of Parents Caring for a Child With Complex Medical Needs
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YES! Magazine - Health & Happiness
The vitamins and medications that flow through the tube help Claire, who has a rare genetic condition, survive.
Without their commitment and round-the-clock care, Claire would live in a hospital or institution, or possibly, tragically, not be here at all.
Because they don’t get enough help, parents can become overwhelmed or depressed, she says.
A hospital social worker recommended she apply for the Medi-Cal and Home and Community-Base Alternatives (HCBA) waiver programs, which would cover Claire’s medical care.
She writes on topics related to health care, social justice, and maternal and child well-being.
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