Courtesy of Tim and Kelsey DruryBut over time, Jack stopped hitting milestones — and the joy of early triumph gave way to fear. Early signs, growing concernsThe Drurys first noticed something was off around 8 months, when Jack still hadn’t rolled over. Courtesy of Tim and Kelsey Drury“He was right on target as far as fine motor skills and babbling,” Kelsey said. Courtesy of Tim and Kelsey DruryThe diagnosis was crushing — a disease so rare, even their own doctors were stumped. Courtesy of Tim and Kelsey Drury“We all have a time that eventually ends,” Tim said.