Andrew Jackson, who has lived with ME/CFS for 13 years, is one of more than 20 people featured in Lives We Cannot Live, a photographic exhibition at the Oxo Tower Wharf in London. Andrew Jackson (Image: Supplied)Mr Jackson, 58, said: “As each year ticks by, I’m slowly getting weaker, experiencing the debilitating effects and exhaustion of ME/CFS. "Yvette and I are keen to raise awareness of the condition as there is a lack of understanding of what it’s like to live with ME/CFS. Mr Jackson is the fourth generation of his family to run Littlebeck Farm, a 180-acre beef and sheep farm near Penrith. The exhibition includes a striking image of Mr Jackson lying in a darkened room, part of his daily routine to manage his symptoms.