Girl, 5, with rare childhood dementia suffers 187 seizures in a dayHer condition currently has no cureView 8 Images (Image: SWNS)A little girl who has up to nearly 200 seizures a day is battling with a rare form of childhood dementia. He explained that ultimately, without treatment, life expectancy is between five and eight years old." View 8 Images (Image: SWNS)‌Holly was diagnosed with CLN2 Battens Disease, a type of childhood dementia, on March 26, 2024. ‌View 8 Images (Image: SWNS)It cited the drug's high price of more than £500,000 a year per child and limited evidence of long-term effectiveness. Sadly for Holly, her seizures seem to be getting worse and has set a 'heart-breaking' record of 187 a day.