Those are the words of a father who walked from Southampton to Westminster to demand action on a postcode lottery in motor neurone disease (MND) treatment. Kevin Jakeman completed the walk on Wednesday, January 28, with help from friends and family. He undertook the challenge to call for improved access to Tofersen, a treatment which can slow of stop the progression of the disease for patients. However, the treatment is only available to those in certain areas, with Lillia, Mr Jakeman’s 19-year-old daughter, one of those unable to access it. And the Motor Neurone Disease Association has tried to put pressure on Southampton Hospital, because they are one of the biggest MND departments in the country.