A little Australian girl who was born with a rare health condition and captured the hearts of people around the would has died aged six. Luella Oudshoorn, best known online as Lulu, was born with West Syndrome, a rare form of epilepsy that causes infantile spasms, which impacts development. “6 years, 3 months, 29 days,” Erin wrote. The tragic announcement was flooded with heartfelt condolences, mourning little Lulu. On the Instagram page, Erin reguarly shared updates on the medical challenges the family faced while caring for Lulu’s condition.