"It is with the most painful, shattered heart to share that our darling Lulu passed away peacefully in our arms yesterday, surrounded and profoundly loved on by all of her extended family," Oudshoorn wrote. Oudshoorn ran an Instagram page dedicated to documenting her daughter's experience with a rare form of epilepsy called West syndrome. Erin and Lulu Oudshoorn. Erin & Lulu/Instagram"At almost three years old, she has daily seizures, global developmental delay where she cannot walk, independently stand or independently feed herself, and is non verbal," Oudshoorn wrote at the time. Commenters expressed their grief and support for the Oudshoorn family in the comments.