Sign up for our free Health Check email to receive exclusive analysis on the week in health Get our free Health Check email Get our free Health Check email Email * SIGN UP I would like to be emailed about offers, events and updates from The Independent. Adam Rehman underwent a one-time gene therapy, Casgevy (also known as exa-cel), designed to cure the debilitating blood disorder thalassaemia. Adam, from Oldham, was one of the initial children to benefit from the treatment, according to NHS Blood and Transplant (NHSBT). While the official price stands at £1.65 million per patient, a confidential agreement between the NHS and manufacturer Vertex suggests the actual cost is likely lower. Casgevy offers a vital option for patients who are suitable for a stem cell transplant but lack a donor.